ARDS Survivors
Being discharged from the hospital is a good day for most people, but it can also be stressful. Post-ARDS life can have challenges, especially if you have been left with long-term problems related to your illness. Some ARDS survivors recover completely and resume their lives, while others may struggle to cope, something no one expected.
Here you can find information to help you navigate post-ARDS life.
Starting in 2024, ARDS Alliance added to the awareness efforts by launching ARDS Survivor Week, which focuses on the survivors and the challenges they may face. Click here to learn more about ARDS Survivor Week.
FAQ
Our All About ARDS section addresses many questions related to ARDS and life after ARDS. Survivors and their family and friends can find answers to questions, such as can I get ARDS again, why am I so tired, and can ARDS be prevented? You may also find our Life After ARDS Information Guide helpful in explaining some of the issues that could last long after discharge from the hospital.
KNOW THE ARDS FACTS
Many researchers are working to learn more about what causes ARDS, how it affects patients, and life after ARDS. There are clinical trials underway to help treat ARDS – click here to view.
AFTER DISCHARGE FROM THE HOSPITAL
Once you have been discharged from the hospital, it may seem that you’ve been left to fend for yourself. Discharge instructions are sometimes rushed or may be incomplete, or you may not think of the questions you need to ask. To help you with the hospital to home or hospital to rehab transition, ARDS Alliance has put together a checklist with the most common issues that come up. Click here for the list.
Since ARDS survivors are at risk for repeat infections, you should also speak with your doctor about any vaccinations that you may need to reduce the likelihood of getting another infection. Regaining your health after ARDS can also be slow, but good nutrition can help you along the way.
CONNECT WITH OTHER ARDS SURVIVORS
ARDS Alliance Chat is a virtual support community designed for people affected by ARDS. To learn more or join, please contact us.
LEARNING ABOUT POST-ARDS ISSUES
Many people who spend time in an intensive care unit (ICU) develop problems like post-traumatic stress disorder (PTSD). Those who were treated for ARDS may develop not only PTSD, but other problems as well. You can learn more about PTSD here.
COPING WITH MENTAL HEALTH ISSUES AFTER ARDS
Your mental health is a vital part of your overall recovery after ARDS. If you find yourself struggling with anxiety, depression, or any other mental health issue and you don’t know where to turn, reach out to us and we’ll try help you get support.