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Miles for Marybeth was created to celebrate the life of Marybeth Monaghen and to raise awareness for ARDS.
Marybeth lost her battle with ARDS at the age of 36 in 1998. The ARDS Alliance was formed to help ALL those affected by ARDS. The first World ARDS Awareness Day was 8/8/22. August 8th was the day that Marybeth passed away. If you add 8-8-22 together, you come up with 38. 38 is the number of miles we will ride to remember Marybeth and also ALL those affected by ARDS.
The funds raised at this event will help the ARDS Alliance, help the ARDS Community and raise awareness for ARDS.
We are a network of patient-advocates, scientists, disease experts, and drug developers who have joined together to leverage our collective knowledge and resources to educate, influence policy makers and accelerate research to transform our understanding of ARDS.
We host weekly support groups with the patient community.
We are working towards a comprehensive patient registry to improve research and clinical trial participation
We host and participate in educational webinars on topics affected the ARDS Community.
We are working to expand reach of education and support through creation of educational materials.
We lend patient voices to policy issues impacting the diagnosis and treatment of ARDS
We have established a grant program that provides small grants to ARDS survivors to reduce financial burden post-ARDS.
We collaborate and extend partnerships with other nonprofits, academic institutes and industry to advance ARDS treatments and care.
Please provide us with your first name, last name, a valid email address and your role in order to register for our support group.
